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Families in the autism community have shared with me their fears as their children transition to adulthood. Many people lose access to crucial services and face tremendous uncertainty if their parents can no longer care for them.
When you take a drug to treat high blood pressure or diabetes, you have an objective test to measure blood pressure and the amount of sugar in the blood. It is straight-forward. With autism, you are looking for changes in behavior.
When our son's autism was diagnosed at the age of 2, there was no clear prognosis. We didn't even know if he'd ever learn to talk. But we found talented people to work with him and he improved, slowly at first and then more rapidly.
What is important is to treat everyone like an individual and learning not to generalize autism. With autism, people make assumptions, but it's very broad, and everyone's so different. You have to treat each person as an individual.
What is missing from today's dialogue is the effect autism is having on families, our society and what the unknown factors are. The 300lb. gorilla in the room is that our children with autism today will soon become adults with autism.
The thing is, autism is a big spectrum. Going from folks who remain nonverbal, all the way up to, ya know, famous scientists and musicians. And we've got to work on strengths. We also have to work on teaching basic manners and skills.
My wife Cecily Adams was dying of cancer, my daughter Madeline was struggling to overcome an autism diagnosis, and my father was dying, all at the same time. Writing the journal was a cathartic experience, and an extremely positive one.
And now I know it is perfectly natural for me not to look at someone when I talk. Those of us with Asperger's are just not comfortable doing it. In fact, I don'treally understand why it's considered normal to stare at someone's eyeballs.
A placebo-controlled, double-blind, randomised trial of boys with autism found that two to three servings of cruciferous vegetables a day improves social interaction, abnormal behaviour and verbal communication - within a matter of weeks.
Autism currently affects one in 88 children in the U.S., and its prevalence continues to rise. That's why it's important to help organizations like Autism Speaks raise awareness and funds to support families and individuals impacted by it.
If you start using a medication in a person with autism, you should see an obvious improvement in behavior in a short period of time. If you do not see an obvious improvement, they probably should not be taking the stuff. It is that simple.
We've done fMRI scans of people taking the 'Reading the Eyes' test, and what we've found is that the amygdala lights up in trying to figure out people's thoughts and feelings. In people with autism, they show highly reduced amygdala activity.
Corner one of the hundreds of doctors who specialize in autism recovery, and they'll tell you stories of dozens of kids in their practice who no longer have autism. Ask them to speak to the press and they'll run for the door. They know better.
A National Database on Autism Research is fostering sharing of data and collaborations. Scientists are also making great strides at the interface of biology and engineering with new technologies that are laying the groundwork for future advances.
When I first started in this field there were all kinds of stereotypes about autism, as if these were children from another planet, or children who had been brought up by wolves, that they weren't part of our population and were somehow separate.
I worked for a while as a teaching assistant while I was struggling. I really enjoyed it, working with kids with special needs, autism. It takes a hell of a lot of concentration, and you've got to focus on the child properly for seven hours a day.
Everyone recognises that genes are part of the story but autism isn't 100% genetic. Even if you have identical twins who share all their genes, you can find that one has autism and one doesn't. That means that there must be some non-genetic factors.
One out of six women are toxic with mercury. Mercury comes out of coal plants and chlorine plants. I am toxic, I deal with symptoms, children are born with, you know, autism - there is an epidemic in this country. This is like, the air that we breath.
There's a saying within the Asperger community: if you've met one person with Asperger's syndrome, you've met one person with Asperger's syndrome ... Within this condition, beneath this label, the variety of personality, of humor, of behavior, is infinite.
These diagnostic profiles like depression, ADHD, autism, dyslexia, it's half science and the other half is a committee of doctors bickering over what it should be, and it has changed. It's not precise like a diagnosis of tuberculosis would be very precise.
My brother was diagnosed with autism at age 2. At the time, I was young, so I didn't really understand what it all meant. The doctors thought there was a possibility my brother wouldn't be able to speak - he was diagnosed on the severe end of the spectrum.
The position of Autism Speaks has been for quite awhile that we need to find out what's happening. We know there's a genetic component, and there's an environmental trigger, and until we get to the bottom of what's happening, no one knows what causes autism.
I'm hoping that autism is going to get to that same point, where it becomes quite ordinary to say, 'I have autism,' or 'I have Asperger's syndrome,' and that there will be many more resources available to make life easier for people on the autistic spectrum.
Labeling a child's mind as diseased-whether with autism, intellectual disabilities, or transgenderism-may reflect the discomfort that mind gives parents more than any discomfort it causes their child. Much gets corrected that might better have been left alone.
One of the places where research is needed is all the sensory problems. And you get sensory problems not just with autism, but with dyslexia, learning problems, ADHD, attention deficit, you know, things like sound sensitivity, problems with fluorescent lighting.
Jenny McCarthy has used her celebrity and sex appeal to attract attention to autism. And while no one questions McCarthy's determination and passion, many scientists have debunked her anti-vaccine message and her claims that a gluten-free diet can provide a cure.
A child gets vaccinated and soon after, autism symptoms emerge. The apparent cause-and-effect is understandable but erroneous - more a coincidence of the calendar and childhood developmental stages than anything else, as repeated and exhaustive studies have shown.
Autism's a very big spectrum. At one end of the spectrum, Einstein would probably be labeled autistic, Steve Jobs, half of Silicon Valley, you know, Van Gogh. And at the other end of the spectrum, you got much more severe handicaps where they never learn to speak.
Steve Jobs was probably mildly on the autistic spectrum. Basically, you've probably known people who were geeky and socially awkward but very smart. When does geeks and nerds become autism? That's a gray area. Half the people in Silicon Valley probably have autism.
I'm looking into different parts of Autism Speaks. There's a lot of focus on the first, early diagnosis of younger kids, which is amazing, but I'm wondering, what about these older kids? What happens with them? So I would like to try to find something that fits that.
Most people think that it would be hard to be on a set or act for people with autism. But when you think about it, most people with autism use a script in their daily life to communicate in social situations, like at a restaurant, or you know, with a day-to-day conversation.
Non-fiction is a big responsibility. Rationality. Facts. The urgent need to reflect some small aspect of reality. But fiction is a private autism, a self-referential world in which the writer is omnipotent. Gravity, taxes, and death are mere options, subject to the writer's fancy.
When you see an object, it seems that you see it as an entire thing first, and only afterwards do its details follow on. But for people with autism, the details jump straight out at us first of all, and then only gradually, detail by detail, does the whole image float up into focus.
When we come to research, if we want to find out the cause of autism, we're going to have to be much more specific, and that's why when it comes to research, I'm fairly strict with respect to criteria. When it comes to treatment, I'm much more open to not making that differentiation.
Some autistic people have savant skills. All autistic people do not have savant skills. Autism is a very variable disorder varying all the way from Einstein, emollient scientist, just a little bit of the trait, many scientist and engineers, down to somebody that's going to remain nonverbal.
Parents of recovered children, and I've met hundreds, all share the same experience of doubters and deniers telling us our child must have never even had autism or that the recovery was simply nature's course. We all know better, and frankly we're too busy helping other parents to really care.
I know children regress after vaccination because it happened to my own son. Why aren't there any tests out there on the safety of how vaccines are administered in the real world, six at a time? Why have only two of the 36 shots our kids receive been looked at for their relationship to autism?
There are disagreements over whether autism is something that should be always and all the time embraced and celebrated as just a different way to be human, or whether autism sometimes can be really so debilitating to individuals that you want to do something to change those disabilities in them.
I can explain how a person with autism thinks. I am very, very interested in how people think. It's been a gradual process of learning more and more about how my thinking process is different. You know it's bottom up - you take specific examples to make concepts and then I put them in categories.
Let's get into talking about how autism is similar animal behavior. The thing is I don't think in a language, and animals don't think in a language. It's sensory based thinking, thinking in pictures, thinking in smells, thinking in touches. It's putting these sensory based memories into categories.
Mild autism can give you a genius like Einstein. If you have severe autism, you could remain nonverbal. You don't want people to be on the severe end of the spectrum. But if you got rid of all the autism genetics, you wouldn't have science or art. All you would have is a bunch of social 'yak yaks.'
Because people with autism are also strongly obsessional, meaning that they pursue their current interest to extraordinary detail and lengths and in great depth, they can develop 'tunnel vision' that prevents them from seeing the bigger picture, including the repercussions of their current actions.
We can either continue to collectively stand on the sidelines and debate what is causing autism and if it is an epidemic or we can get on the field and start addressing the real problem - a generation of children with autism. We are not focusing enough on prevention, treatments and support services.
If you Google some sites about the link between vaccines and autism, you can very quickly find that Google is repeating back to you your view about whether that link exists and not what scientists know, which is that there isn't a link between vaccines and autism. It's a feedback loop that's invisible.
Don't think that there's a different, better child 'hiding' behind the autism. This is your child. Love the child in front of you. Encourage his strengths, celebrate his quirks, and improve his weaknesses, the way you would with any child. You may have to work harder on some of this, but that's the goal.
In fact, when we as neuro-typical people encounter a person with autism spectrum syndrome who's always been that way it is that we have to adjust. Just because we can read people with autism correctly, whatever that word is why do we always default to saying, 'Well, that kid is not normal?' What is normal?
I have a fairly strict definition of early infantile autism. That is not to say that people who don't meet that classic description don't have autism, but we might do well to narrow our definitions, and our samples, down to groups that are very similar, because I think you're more likely to find the cause.
Autism is a neurological disorder. It's not caused by bad parenting. It's caused by, you know, abnormal development in the brain. The emotional circuits in the brain are abnormal. And there also are differences in the white matter, which is the brain's computer cables that hook up the different brain departments.
Information's right at our fingertips, but so is what you want to believe. It's the classic thing of someone Googling 'autism vaccines' - they'll find what they're looking for, depending on what they think. You'll find lots of people who are just bolstering what they already think, bolstering their cultural attitude.
There are still so many unanswered questions about what causes autism and other developmental disorders on the spectrum. So it is vital that we continue to research and educate ourselves in the hopes that we may begin to understand the challenges that these children and their families continue to face with each passing day.